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24 publications

ALS United Celebrates Signing of the ACT for ALS Reauthorization Legislation
November 4, 2026
Press release
ALS Organizations Celebrate the Signing of the ACT for ALS Reauthorization into Law
November 3, 2026
Statement
Air Carrier Access Amendments Act Support Letter
October 30, 2026
Coalition letter
EverythingALS and ALS United Partner to Expand National Coverage of ALS Clinical Trial Matching with SAVA AI
October 13, 2026
Press release
ALS United Advocacy Newsletter – October 2026
October 13, 2026
Newsletter
ALS United Celebrates Final Congressional Passage of ACT for ALS Reauthorization
September 29, 2026
Press release
Congress Must Finish the Job on ACT for ALS Reauthorization Before Recess, Says ALS United
September 14, 2026
Press release
ALS United Applauds Passage of ACT for ALS Reauthorization Legislation
July 23, 2026
Press release
ALS United Advocacy Newsletter - June 2026
June 2, 2026
Newsletter
ALS United Applauds Senate Introduction of ACT for ALS Reauthorization Legislation
May 1, 2026
Press release
ALS United Statement for Energy and Commerce Hearing - Act for ALS Reauthorization
April 14, 2026
Comment/testimony
ALS United Applauds Introduction of ACT for ALS Reauthorization Legislation
April 8, 2026
Press release
ALS Advocacy Community Unites Behind ACT for ALS Reauthorization Introduction
April 8, 2026
Press release
FY2027 ALS Community Funding Letter
March 4, 2026
Coalition letter
ALS United Advocacy Newsletter - March 2026
March 3, 2026
Newsletter
ALS Better Care Act Clinicians' Letter
February 26, 2026
Coalition letter
ALS Better Care Act
February 19, 2026
One-pager
ALS United Statement on the GAO Report
February 4, 2026
Statement
Statement on FY26 Funding Package
February 2, 2026
Statement
Justice For ALS Veterans Hearing 2.4.2026
February 2, 2026
Comment/testimony
PERA Act Letter to Senate
January 26, 2026
Comment/testimony
Support of Veterans with ALS Reporting Act
January 12, 2026
Comment/testimony
Neuromuscular Advocacy Organizations Oppose Health Care Cuts
June 16, 2025
Coalition letter
FY 26 Congressional Funding Requests
March 18, 2025
Coalition letter

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