ALS United Advocacy
Be a Force for Change
At ALS United, advocacy is at the heart of our mission. With the strength of our community and dedicated advocates like you, we've achieved incredible progress together. Take action today to support our mission and help drive change for those affected by ALS.
Advocacy & Awareness
We're focusing our advocacy efforts on three critical areas that will make the biggest impact for people living with ALS and their families:
- Expand Research & Trial Access: Increasing research funding opportunities, reducing barriers to clinical trial participation, and supporting innovative treatment approaches that accelerate progress toward treatments and a cure.
- Enhance Financial Support Systems: Advancing caregiver support initiatives like the Credit for Caring Act, promoting tax relief for ALS-related expenses, and supporting home modification assistance to ease the financial burden on families.
- Improve Healthcare Access & Coverage: Addressing provider availability gaps, supporting transportation solutions, and expanding coverage for treatments to ensure comprehensive care.
Based on comprehensive community input, our approach combines data-driven decision making with collaborative advocacy, maintaining flexible response to emerging legislation while supporting both federal and state initiatives.
View All Current Action Alerts →
Recent Victory
Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Act - Signed into law January 2, 2025, this landmark legislation enhances VA programs for caregivers and veterans, benefiting over 7.8 million military and veteran caregivers nationwide.
See Our Full Advocacy History →
How You Can Get Involved
Your voice drives change. Here's how you can make a difference:
- Take Action: Contact your representatives through our current action alerts.
- Share Your Story: Personal experiences create powerful policy change.
- Connect Locally: Join advocacy efforts in your community.
- Stay Informed: Get updates on advocacy opportunities.
Ready to become an advocate?
Connect with a Member Near You to sign up for local advocacy opportunities and action alerts.